Introduction
In order to understand lymphoedema you need to know a little bit about the lymphatic system.
The lymphatic system is a network of vessels (tubes) and nodes (glands) that cover the body and drain fluid from the tissues into the blood stream. The lymph vessels collect extra fluid, protein and waste material from the body tissues and transport it through the lymph nodes back into the blood. The lymph nodes filter the fluid of any unwanted material and make special cells that help the body fight infection.

What is lymphoedema?
Lymphoedema is a swelling in the tissues below the skin that occurs when the lymphatic fluid cannot drain away. Lymphoedema can occur in the arm or trunk on the affected side of your body. This can happen if the lymphatic system is damaged or blocked. Similarly, if lymph nodes are removed as part of cancer surgery this can also block the normal drainage pathway. Lymphatic vessels and nodes can also be damaged by cancer and any scarring that follows after surgery or radiotherapy. If lymphoedema fluid is dammed behind the blockage and builds up in the surrounding tissues this can also result in tissue swelling.
Other causes that may interrupt or damage the Lymphatic system include:
- Surgery
- Infection
- Severe injury
- Burns
- A congenital or hereditary abnormality.
NOT ALL LYMPHOEDEMA IS CANCER RELATED
How is lymphoedema managed?
To reduce the risk of making the swelling worse, take care not to injure your skin or introduce infection. Take extra care of your feet and toe nails if you have leg swelling
Gentle exercise will activate the muscles which help pump lymph fluid out. Keeping still or over exercising will increase swelling
Simple lymph drainage is used to stimulate the drainage of lymph in the lymph vessels to other parts of the body
If appropriate, wearing a specially designed garment will reduce the collection of lymph fluid and assist your muscles to pump it away
Taking care of your skin
Good skin care plays a vital part in the treatment of swollen or at risk areas. Stretched skin can become dry and cracked and any break or injury to the skin is a potential entry for bacteria which thrive in the warm, protein-rich fluid of the swelling.
Prevention of infection in the skin tissues is of great importance. Not only is an infection unpleasant and painful, but it may also cause the swelling to get worse. Any infection should be treated promptly with a two week course of antibiotics. So if you think you may be developing an infection see your doctor immediately, If you do have an infection, discontinue the use of any hosiery until pain and swelling resolves and stop massage or exercise until it is better.
Some people who suffer repeated infections may be prescribed a small but continuous dose of antibiotics over a long period of time as a preventative treatment.
If infection tends to be a problem, it may be advisable to take an emergency supply of antibiotics with you, especially if you are going on holiday, just in case they are needed. Your doctor or lymphoedema nurse will advise you.
Skin with fungal infection such as athlete’s foot may provide a potential entry site for bacterial infection as well. Therefore such fungal infections should receive prompt treatment.
You may hear the term acute inflammatory episode (AIE) or cellulitis. These are commonly used words which refer to an infection of the skin tissues.
Tips for good skin care
- Wash and dry the at risk area daily, particularly between toes
- Inspect the at risk area daily, looking out for any breaks in the skin or signs of infection
- Treat even the smallest injuries, clean well and apply antiseptic solution
- Moisturise the swollen or at risk area daily using a product recommended by the therapist or nurse. Usually this is done in the evening when the hosiery has been removed
- Avoid creams and soaps that contain perfumes and additives. Doublebase gel is recommended to moisturise your skin. Aqueous cream can be used instead of soap
- Avoid burns and sunburn, protect your skin from the sun
- Avoid scratches from animals
- Avoid insect bites, use an effective insect repellent (e.g. on holiday, in the garden)
- Take great care when cutting nails of the affected side
- Wear protective clothing and boots for gardening
- Use an electric razor for removing unwanted hair
- Don’t have injections or acupuncture done on affected areas
- Avoid hot baths and showers
- Avoid restrictive clothing and wear well-fitting footwear
- Use an anti-fungal cream or powder to prevent athlete’s foot
- Avoid going barefoot, especially at the beach, pool and other public places.
Hints for positioning movement
- Avoid standing for long periods of time as the muscles cannot pump away the fluid. If you do have to stand for a period of time remember to bend and stretch your feet at the ankles and transfer your weight from one leg to the other
- When sitting try to rest with your legs supported with your feet at the same level as your knees. Resting your legs on a sofa may be an idea
- Be careful of vigorous exercise – if you play sport find out how much you can do without causing more problems with swelling or discomfort
- Cycling is often helpful for leg swelling – remember to wear your stocking(s) and make sure the cycling is not too vigorous. A static exercise bicycle set at a low resistance can be used as an alternative
- Swimming is a very useful exercise and will be especially beneficial if you wear your stocking, use an old stocking as the chlorine can damage the fabric
Exercises – see leaflet for diagrams
Exercise is important for helping to drain fluid since muscles help to pump lymph out of the limb. Very vigorous exercise, however, causes an increased blood supply consequently forming more fluid in the tissues. Try to do gentle regular exercise rather than intensive bursts, normally twice a day is ideal. Do the exercises slowly, rhythmically and gently.
Remember to wear your hosiery when you are exercising.
The following exercises are designed to help keep your leg joints mobile and prevent stiffness and to stimulate drainage in the swollen area by working the muscles. Do the exercises one leg at a time (except exercise 4 and 5 when both feet can be used together). Repeat each exercise about 10 times:
- Tighten your buttock (gluteal) muscles, hold for 3 seconds, then relax.
- Tighten your thigh (quadriceps) muscles, hold for 3 seconds, then relax.
- Bend up your leg at hip and knee. Stretch out your leg, then slowly lower back down to rest.
- Bend and stretch your feet at the ankles, slowly and firmly.
- Slowly and firmly circle the feet at the ankles, first in one direction, then in the other direction.
Guidelines for wearing hosiery – see leaflet for step-by-step diagrams
A compression hosiery is worn to help limit the formation of lymph fluid and to provide resistance against which the muscles can pump and move the fluid more effectively. Hosiery may help to reduce the swelling and maintain the reduction.
- Apply hosiery early in the morning, wear all day and remove when you go to bed
- If you have very mild oedema you may have been advised that it is only necessary to wear your hosiery occasionally or for part of the day. Make sure that you wear it during activity g. gardening, housework, sport, walking
- Use rubber gloves when applying hosiery, either latex or household gloves. This gives you a better grip on the hosiery and helps prevent tearing or laddering
- Ensure there are no creases or wrinkles. The hosiery should feel firm, supportive and comfortable
- Do not fold hosiery over at the top
- Please check the skin colour, warmth and sensation when wearing the hosiery. If you notice a change of colour, warmth or any new tingling, numbness, cramp, throbbing, pins and needles, pain or shortness of breath – remove the hosiery and contact the lymphoedema nurse immediately
- Try not to apply hosiery directly after you have applied moisturising cream, this makes it ‘sticky’ to get on and may damage the fabric of the garment
- If you find your hosiery tightens during the day, think about your movements, too much activity or too much rest can increase swelling. If you do work hard, rest for at least 30 minutes or if you have been resting take gentle exercise. If it continues to be too tight, please remove it and get in contact with us
- Check the area for soreness or blistering when you remove your hosiery. If you have any problems with your skin (e.g. breaks or injury) please contact us as it may be inadvisable to wear hosiery
- Please follow the manufacturer’s recommended washing instructions and remember to let your hosiery dry naturally – not on a radiator or in a tumble dryer
- Please do not cut, stitch or alter your hosiery in any way
- You should be supplied with 2 garments. Please wear them evenly as failure to do so may give different control to the oedema (one to wash and one to wear)
- Hosiery should be replaced every 6 months. Please contact us if it becomes worn, laddered or loose in the meantime
- If you are unfortunate to have an infection/acute inflammatory episode/ cellulitis please remove your hosiery until the pain and swelling has reduced. Inform your lymphoedema clinic
- If you go swimming wear your hosiery if you feel you can, as you will get more benefit from the exercise. Use an older garment.
Please remember, if you have any problems or questions about your hosiery contact your lymphoedema nurse
Sources of information and support
89 Albert Embankment, London, SE1 7UQ
Tel: 0207 8407840 Macmillan Cancerline: 0808 8082020 Website: www.macmillan.org.uk
Provides free information and emotional support for people living with cancer and information about UK cancer support groups and organisations.
380 – 384 Harrow Road, London, W9 2HU
Helpline 0845 1309177 (local rate Mon-Fri 10am – 1pm) Textphone: 0870 6039176 Website: www.dif.org.uk
National resources for information about equipment to help people with a disability carry out daily living activities.
St. Luke’s Crypt, Sydney Street, London, SW3 6NH Helpline: 0207 3514480 Fax: 0207 3499809
Website: www.lymphoedema.org/lsn
The LSN is a national charity that provides telephone information and support to people with lymphoedema. It also produces a quarterly newsletter and a wide range of fact sheets.
Kiln House, 210 New King’s Road, London, SW6 4NZ
Helpline: 0808 8006000 (Monday – Friday, 10am – 5pm and Saturday, 10am – 2pm) Website: www.breastcancercare.org.uk
An organisation offering information and support to those affected by breast cancer and the effects of treatment.
P.O. Box 14491, Glenrothes, Fife, KY6 3YE Tel: 01592 748008
Website: www.mlduk.org.uk
An organisation which will help you to find a manual lymph drainage therapist in your area.
Leaflet
Simple lymphatic drainage for right leg lymphoedema
Simple lymphatic drainage for left leg lymphoedema